Me:
"I've been pretty much bedridden 16-20 hours per day and housebound since August."
"I barely manage to eat and shower every day. (Though I do blog sometimes.)"
People:
"Do you want to go on a hike? We can come pick you up."
"Do you want to go out for dinner? A movie?"
"We're going to Maker Fair in San Mateo, if you're interested in going too."
Me:
Sigh.
Hiking... if people want to carry me in a bed while making sure there is not a single tick within a mile of me, sure!
Apparently, there is still a lot of work needed on my descriptions, and I haven't seen anyone be able to describe chronic fatigue syndrome in a way that is anywhere close to comprehensible to other people. Which makes me wonder if it is something that is even describable in words.
Wednesday, May 30, 2007
Lost In Translation
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5 comments:
I just spoke to an acquaintance who had chronic fatigue syndrome for 2 years. She's back to normal. I'm trying to find your email address and I'll send you a list of stuff she said helped her. I'm sure it's old hat to you, but I'll pass it along anyway:)
fourthbreakfast - thanks for thinking of me. for my e-mail address, many versions of my name at cs.stanford.edu will work. Eg. first initial appended to last name. :)
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